Special Hearts need Special Help
See the list of blog posts below for info that may help guide development for special heart kiddos.
Sleep for Special Little Bodies
Parenting a child with a heart condition often means sleep looks different. This short guide explains why dysregulation happens, how sleep pressure really works, and what actually helps in the middle of the night — without guilt or cry-it-out.
Cognitive Development: From the Glenn to Fontan
What does brain and cognitive development look like for a baby at only about 80-85% oxygen? It ranges and no babies are the same but there are some trends. Read the summary below.
Summary of Glenn Head
What is Glenn Head and what symptoms should I look out for, specifically in toddlers. While Glenn Head is usually monitored right after receiving the Glenn surgery, it can continue to happen prior to the Fontan surgery. Here is a summary of symptoms and cues to watch out for.